Rare Disease Day is February 28, 2022.
Columbus Children’s Foundation in collaboration with Realia by Jen are excited to announce their launch of this year’s bracelet, featuring the word “HOPE.” This will involve a social media campaign to spread awareness for children living with ultra-rare genetic diseases. This is set to launch on Rare Disease Day.
This is the second year of CCF’s bracelet launch. In 2021, a black onyx bracelet with the word “RARE” was launched. This year, the featured word on the bracelet is “HOPE.”
CCF aims to bridge the treatment gap for children living with ultra-rare genetic diseases by helping to develop a cure and accelerating access to gene therapy treatments, giving children and their families hope to live their lives to the fullest.
Campaign link: https://acceleratehope.givesmart.com
Learn more about CCF: https://columbuschildren.org/who-we-are/