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COLUMBUS CHILDREN’S FOUNDATION AND PHOENIX NEST BIO PARTNER TO ACCELERATE GENE THERAPY FOR SANFILIPPO SYNDROME TYPE C

Organizations unite with world-class scientific and AAV technology leaders to find a cure for life-altering and fatal ultra-rare disease Brooklyn, NY and Raleigh, NC (Oct 28, 2020)—Phoenix Nest, a New York based biotechnology company will partner with Columbus Children’s Foundation (CCF) to advance the development and manufacturing of a potential gene therapy treatment for Sanfilippo…

Dr. Krystof Bankiewicz — World Renowned Gene Therapist — Named President and Chief Executive Officer, Columbus Children’s Foundation

Columbus Children’s Foundation announced today that Krystof Bankiewicz, M.D., Ph.D., has been named president and chief executive officer. Dr. Bankiewicz will work closely with Executive Director Laura Hameed and CCF’s esteemed board of trustee members, the CCF Cures Cabinet, and scientific advisors.  Bankiewicz, founder of multiple biotech companies and tenured professor in the Department of Neurosurgery at The Ohio…

Cure Rare Disease Announces Partnership with Columbus Children’s Foundation

Companies Unite in an Effort to Drive the Development of Drugs for Rare Diseases Globally Boston, Massachusetts–(Newsfile Corp. – August 19, 2020) – Cure Rare Disease (CRD), the emerging, Boston-based nonprofit on a mission to develop customized therapeutics for rare diseases, announced a strategic partnership with Columbus Children’s Foundation (CCF), a nonprofit biotech known for its role in the…

A successful operation in Varsovia

Four year old Irai had a rare disease that only affected around 130 children worldwide –  aromatic amino acids decarboxylase (AADC) deficiency, also known as Juvenile Parkinson’s. It is a genetic neurological disorder that affects the brain’s ability to produce neurotransmitters, specifically dopamine and serotonin, the most crucial ones for daily life. The lack of…

Our next event

Solidarity concert at the Prado National Museum

December 11, 2019 8:30 pm – 10:00 pm Museo Nacional del Prado, Calle de Ruiz de Alarcón, 23 Madrid , 28014 Spain + Google Map The Columbus Foundation, in collaboration with the Museo Nacional del Prado, has organized a solidarity concert on the occasion of its second anniversary. An exquisite and extraordinary experience that will take place next Wednesday, December 11, at 8:30 p.m.…