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Our Latest News and Events

Our latest news

Organizations Rally to Help Ukrainian Rare Disease Patients

The Columbus Children’s Foundation (CCF) and CureDuchenne are collaborating to raise money for a group in Gdansk, Poland, called Fundacja (Foundation) Parent Project Muscular Dystrophy, which is giving financial and medical assistance to boys with Duchenne muscular dystrophy (DMD) fleeing Ukraine.

Her Body was a prison: How a new gene therapy change the lives of two Canadian girls

TORONTO — A new gene therapy for an extremely rare disorder has offered two Canadian children a new chance at life, allowing them to move on their own after years of being trapped within their own bodies.The disease is called AAV deficiency, and known more commonly as ‘pediatric Parkinson’s’. It’s a debilitating genetic disorder that…

Columbus Children’s Foundation (CCF) and Viralgen Vector Core announce “Target 10” Program

Organizations unite to develop effective gene therapy treatments bytaking aim at accelerating treatments for ten rare diseases  San Sebastian, Spain and Raleigh, NC (February 25, 2021) – Columbus Children’s Foundation (CCF), an international childhood rare disease foundation with the mission to accelerate access to the most effective gene therapy cures for children suffering from ultra-rare diseases and Viralgen…


Organizations unite with world-class scientific and AAV technology leaders to find a cure for life-altering and fatal ultra-rare disease Brooklyn, NY and Raleigh, NC (Oct 28, 2020)—Phoenix Nest, a New York based biotechnology company will partner with Columbus Children’s Foundation (CCF) to advance the development and manufacturing of a potential gene therapy treatment for Sanfilippo…

Our latest events

Rocket Mortgage Classic

The Rocket Mortgage Classic is BACK and happening July 28th -31st. Columbus Children’s Foundation is excited to be part of the Birdies for Charity program and raise funds through birdies made by PGA TOUR  Players!  Join the fun and help save lives!! Click the link below or in our bio to make your per birdie…

Accelerating HOPE – Rare Disease Day

Rare Disease Day is February 28, 2022.  Columbus Children’s Foundation in collaboration with Realia by Jen are excited to announce their launch of this year’s bracelet, featuring the word “HOPE.” This will involve a social media campaign to spread awareness for children living with ultra-rare genetic diseases. This is set to launch on Rare Disease Day.  This is…

All-Stars For Cures

During the 2022 NHL All-Star weekend, join us for a casual evening to learn more about changing the odds for kids with rare disease.