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Her Body was a prison: How a new gene therapy change the lives of two Canadian girls

TORONTO — A new gene therapy for an extremely rare disorder has offered two Canadian children a new chance at life, allowing them to move on their own after years of being trapped within their own bodies.The disease is called AAV deficiency, and known more commonly as ‘pediatric Parkinson’s’. It’s a debilitating genetic disorder that…

Columbus Children’s Foundation (CCF) and Viralgen Vector Core announce “Target 10” Program

Organizations unite to develop effective gene therapy treatments bytaking aim at accelerating treatments for ten rare diseases  San Sebastian, Spain and Raleigh, NC (February 25, 2021) – Columbus Children’s Foundation (CCF), an international childhood rare disease foundation with the mission to accelerate access to the most effective gene therapy cures for children suffering from ultra-rare diseases and Viralgen…

COLUMBUS CHILDREN’S FOUNDATION AND PHOENIX NEST BIO PARTNER TO ACCELERATE GENE THERAPY FOR SANFILIPPO SYNDROME TYPE C

Organizations unite with world-class scientific and AAV technology leaders to find a cure for life-altering and fatal ultra-rare disease Brooklyn, NY and Raleigh, NC (Oct 28, 2020)—Phoenix Nest, a New York based biotechnology company will partner with Columbus Children’s Foundation (CCF) to advance the development and manufacturing of a potential gene therapy treatment for Sanfilippo…

Dr. Krystof Bankiewicz — World Renowned Gene Therapist — Named President and Chief Executive Officer, Columbus Children’s Foundation

Columbus Children’s Foundation announced today that Krystof Bankiewicz, M.D., Ph.D., has been named president and chief executive officer. Dr. Bankiewicz will work closely with Executive Director Laura Hameed and CCF’s esteemed board of trustee members, the CCF Cures Cabinet, and scientific advisors.  Bankiewicz, founder of multiple biotech companies and tenured professor in the Department of Neurosurgery at The Ohio…

Our next event

Solidarity concert at the Prado National Museum

December 11, 2019 8:30 pm – 10:00 pm Museo Nacional del Prado, Calle de Ruiz de Alarcón, 23 Madrid , 28014 Spain + Google Map The Columbus Foundation, in collaboration with the Museo Nacional del Prado, has organized a solidarity concert on the occasion of its second anniversary. An exquisite and extraordinary experience that will take place next Wednesday, December 11, at 8:30 p.m.…