Score a goal for SPG50!

On July 29 at 6:00 p.m., at the Reale Arena Stadium (San Sebastián)Real Sociedad de Fútbol and Bayer Leverkusen  will play a charity soccer match to benefit Columbus Children’s Foundation, Columbus Foundation and efforts to cure the rare disease SPG50.

Funds raised during the charity match will go towards conducting a clinical trial for Spastic Paraplegic Type 50 or SPG50, a slowly progressing neurodegenerative disorder that generally has global developmental delay and affects a very small number of boys and girls around the world. Specifically, only 3 cases are known in Spain, such as the case of little Alberto. Columbus Children’s Foundation, Columbus Foundation, Elpida Therapeutics and the leading manufacturer of adeno-associated virus (AAV) vectors for gene therapy domiciled in San Sebastián, Viralgen Vector Core, have joined forces to develop a treatment that is now undergoing a clinical trial in the United States and that from January 2024 will begin a trial in Osakidetza, at the Pediatric Service of the Donostia University Hospital and at the BioGipuzkoa health research institute. Children affected by the disease from Spain, Germany and Italy will participate in this clinical trial. Please join us in supporting the urgent cause to provide medical treatment for children suffering from SPG50.

Ticket sales coming soon…

Donations gratefully accepted through “Row 0” – Santander Bank, ES73 0049 6668 3424 1628 2325 – BIZUM 07707